Advocating for NF Awareness

Finding Joy, Gratitude, Purpose, and Sonder

Publishing Truth and Beauty

Sonder wishes he could be just like everyone else, but through the love of his parents he learns the meaning of his name and discovers that everyone has a story, strengths that make them special, and a place where they belong. 

Certainly, Sonder is a heartfelt story about empathy, kindness, and learning to love yourself and others. Certainly, Sonder was written by Sarah Powlison, who lives with NF1 and whose favorite word is “sonder.” It is illustrated by Amanda Rose, who lives with NF2-SWN and who looks for shining stars when it’s dark and rainbows in the rain. Sarah and Amanda are advocates for increased awareness about NF and for a future where more treatments are available for NF1, NF2-related Schwannomatosis, and Schwannomatosis. You can find them organizing events, speaking to leaders on Capitol Hill for increased funding, participating in clinical research or advisory panels, supporting friends who live with NF, overcoming their own medical challenges, and doing so with joy, laughter, and love for their NF Neighborhood.

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● About Me
Sarah is the loving life of Michael

Sarah is the author of Certainly, Sonder. She is the loving Wife of Michael for more than 2 decades and joyfully the mother of 3. She is retired from more than 13 years of preK-12 homeschooling, an adventurous home culinarian and foodie, logophile, literary enthusiast, writer, and advocate for the Neurofibromatosis Community. Her greatest goal in life is to be known as someone who loves her neighbors, whether they live next door, in another city, or across the planet. Her favorite word is Sonder and she believes in living life with benevolent curiosity.

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