Advocating for NF Awareness

Finding Joy, Gratitude, Purpose, and Sonder

Publishing Truth and Beauty

Poetry

Original Poetry by Sarah Powlison

Peace

I lift my hands in surrender

rest in worship of you

Because this is where I find my hallelujah

We’ll dance in the fire

And know this is not a crisis to you

Here my mountains melt like wax before you

You are moving them into the heart of the sea.

When all I want to do is hide my eyes

You pull me into your arms and call me Child

And here, in the dark is where you hold my hallelujah

Oh you march out to me

On the waves of my sea

You overwhelm my troubles

They sink next to you

When you stretched out the heavens 

you made a space for me

Only when I am afraid can you give me courage 

Like a rough and uncut diamond, my worth is hard to find

But you polish me with troubles

You trust me with suffering

Yahweh you let me relate with you

And you invite me into dark places where I can represent you

In the heartache of deep waters,

In the tumble of these waves, 

you’re revealing facets in me that make your value shine.

Copyright@ 2021

Dichotomy 

It’s funny how strength conceals itself in the unlikeliest places

The bend of a sapling in the driving wind

The arch of a baby’s back against the carseat belt

The gentle trickle of water and time over rock

How often do we undervalue precious gems lacking unnatural polish and pretense –

even when we miss it, their worth remains the same

Real strength isn’t in sinew and synapse 

It’s the flower that blooms in the middle of war

The sparrow that sings in the gale

The mother that loves when her own body shakes

That celebrates friends while her own heart breaks 

Gait unsteady 

Hands curled in

Ears that really listen from the heart, because they do not work at all

Love all the fiercer because she knows grief

The sweet even brighter because she’s tasted bitter

Strength all the more because she knows she is weak

And so she does not bury the burdens of her soul – she plants them and watches them grow 

Into a tree

Bringing life, bearing fruit, sheltering the stranger and the sister, the daughter and the son

The sapling growing

taking beautiful shape to show the storms that she’s been in

Copyright @ 2026

For Jess.

Vision

Her world has narrowed, sound muffled, vision dimmed,
but her arms stretch wider – her eyes see more clearly,
that which carries her voice over river and mountains,

Speaks of strength that is NOT her own

Watch her turn quiet, for now, while in her stirs a storm

Confusion, loss, lament

Tears that will water flowers for bouquets,
roses that roar of her grace.
And tell the world she is not done creating beauty from ashes.

Copyright @2025

For Amanda

Friend

What is a friend?

She is someone who upon discovering shattered pieces of your heart collects them

Tender handed

Holds them gently 

Washes them in her own tears

With prayers she 

Pieces and pastes

broken shards back in place

Places arms around burdens too hard to speak

She holds some of the pain on her own weary shoulders 

Adding company to sorrows 

Safe Space for grief

Intercessions for Future expectations of joy thrust to Heaven

Together

Copyright @2025

Steady

At the risk of being tragic 

Let me tell you about my life

Because more and more I’ve noticed

That when I’m captive by the pain

It draws me close to you

Bringing glory to your name

And the Sun still runs its course 

In a strong and steady way

Though violent storms rage on

My God is still the same

When tears are flowing fast

Hot sheets of rain 

On a foggy window pane 

I know the one who made me

Covers all my shame

The sun still runs its same steady course

Even wherein violent storms rage strong

a proclamation, a prose, a prayer 

I remind my soul of this

I have a certain provenance 

And

The one who formed me,

Crafted me like clay

Carefully, lovingly

Thoughtfully

I know the One who loves me

Faithfully remains

Even when the Sun is invisible beneath my horizon

And I am cloaked in darkest night

Consistent, unshifting, steadfast, and constant

My God,  My God,

You love you me every day

When I feel like everything is dissonant, and life is out of rhythm

Or it is jarring and staccato 

The truth is the one who gave us ears to hear music and made our souls to feel a lyrical rhyme 

Can make a pleasing tempo

Within or behind the beat

Because steady, steady, my God is always in time

And

I know the One who loves me

Faithfully remains

copyright @2025

Hindrance

When my worship is hindered by disobedience

Let me cast aside my wayward works

May I flee into your arms

And away from sin that harms

Both mine and others’ souls

And Why does it entice me

And why do I so soon

Forget that human anger

Only leads to certain doom?

Skillfully setting up a trap

I step in it.

Equip me with your words and most of all your ways 

to fight the Old Me inside of me

Picking out the great old oaks 

Wedged behind my critical eyes

So that I can see clearly

To capture and discard

My misplaced selfish pride

Casting off offense

Because I recognize my own contempt

Lord, let me only look to you for my defense

And fight my enemy inside me that IS me

Help me March to the rhythm 

Of your drumbeat 

Not my own

With discipline of mind

As I talk to my own soul

Let it be with authority

That I must walk the line

Gentle my heart

To all but my own folly

Teach me, even when it hurts

Discipline me, even when the tears come

Only give me a willing spirit 

And capture me with your Love

Holy Spirit

I need more of you

And so much less of me

Let all my actions be salve not salt

To wounded souls

Made Worthy of your love

Copyright @ 2022

A psalm, The friendship of the Lord

When I walk uprightly in the paths you have set for me

I enjoy your friendship

Your voice speaks to me, and I quicken to listen

Wondering what my True Friend will say

You remind me of wisdom long ago spoken

Of your Word that brings life

And your disciplines that keep me from recklessness

Keep me far from the self-destroying choices

That bring ruin to my soul

Blessed is the one whose neighbor loves the LORD’s truths and who walks in his ways

He enjoys safety and thoughtful care. 

When he is greeted by God’s man, he is treated as one who bears your image

I say to my weary soul

“Your God has done great things, recount each one during the long nights and the burdened days” 

When my soul is filled with trouble, only remembering your ways brings me peace

My human hourglass has not the sand to number every mercy.

I look to you as one greeting a companion from her youth, a kindred spirit

Who alone understands every sorrow and each joy. 

Oh let me return to your beautiful instructions again, so that I may enjoy the security of your friendship.

Because you love me, you call me to higher ways.

To ways not understood by human minds

They bring me life and revive my spirit when it is fainting

Only you give meaning to my life and fruitfulness to my labor

My Friend, when I wander, draw me back to your faithful protection

Remind me that your directions are unerring and your instructions are secure

When I travel through unavoidable danger, let me delight in your immovable might

When I forget the goodness of your dictates, turn me back around

That I may again look for peace through your precepts, and companionship in your friendship.

Copyright @ 2020

About Me
Sarah is the loving life of Michael

Sarah is the author of Certainly, Sonder. She is the loving Wife of Michael for more than 2 decades and joyfully the mother of 3. She is retired from more than 13 years of preK-12 homeschooling, an adventurous home culinarian and foodie, logophile, literary enthusiast, writer, and advocate for the Neurofibromatosis Community. Her greatest goal in life is to be known as someone who loves her neighbors, whether they live next door, in another city, or across the planet. Her favorite word is Sonder and she believes in living life with benevolent curiosity.